Feeling very lost šŸ˜”

Iā€™m really struggling after my second ectopic. We were so excited to be pregnant, having TTC for nearly 14 months beforehand. The first was traumatic, happened just after Christmas and was incredibly painful - it happened during one of the doctors strikes so spent the night from 9pm in A+E fainting in and out of consciousness with incredibly low blood pressure and a lot of pain, before being transported to another hospital where we had to wait to be scanned until 8.30am. From the point of the ultrasound to being rushed into surgery, I was in so much pain that I wasnā€™t able to process the loss until afterwards. I lost over a litre and a half of blood, had my right tube removed and had to have a 3 night stay in hospital.

Our second loss was a complete surprise three weeks ago, and I believed to have had a period two weeks before and we didnā€™t know we were pregnant. The pain wasnā€™t as bad this time, and we reported to the EPU where we had to wait again for a scan, knowing the whole time I was having another ectopic but this time the lack of pain meant that I could sit and think about it all far too much. I was taken down for surgery that evening, and was told the following morning that the ectopic had been on the same side, and had attached itself to a small stump that had been left from the first tube removal.

Even though I know this is best case scenario because I didnā€™t lose my second tube, I am equally terrified of getting pregnant again and facing another loss, and it never happening again. I have never been an anxious person, but now I feel helpless and alone.

I canā€™t stand seeing people announce their pregnancies, and I feel like however much I adore my friends I canā€™t constantly be the doom cloud so if they ask how I am I say Iā€™m fine. I donā€™t know who to turn to. My husband is the most supportive man I could ask for, but he is grieving this loss too and however much he tells me not to feel guilty I canā€™t help it. I feel like Iā€™ve let him down, like Iā€™ve robbed my parents of being grandparents again and I canā€™t stand the fact that I should have been having my first baby this August, and instead Iā€™m mourning the loss of two.

I also have massive guilt at work for having had so much time off, as a teacher you spend your life worrying about the kids in front of you even though you know you shouldnā€™t, and I canā€™t shake the feeling that Iā€™ve let people down.

In addition to all of this, my brother his having a baby and his girlfriend is on the same timeline I should have been on for this second pregnancy. She has two children already and they havenā€™t been together long, and although I love them together and think sheā€™s a breath of fresh air and blooming brilliant for my brother, I canā€™t help but feel jealous and upset that Iā€™m the one whoā€™s married and been with my husband nearly over a decade but sheā€™s the one who gets the baby, and gets to be the one to make my parents grandparents.

I feel like I need to speak to someone professional but I donā€™t know where to start, Iā€™ve tried to look up counsellors but I canā€™t seem to find someone who I feel will understand me properly. I donā€™t know how Iā€™m going to deal with August, and I donā€™t know how to deal with a new niece or nephew when I should have been having a baby too.

A24,

My heart aches for all you are going through. I, too, had 2 ectopic pregnancies, with the 2nd attaching to the stump of the first. These boards are filled with women and men who have expressed similar feelings and who continue to recover from their experiences of ectopic pregnancies. These boards are a safe space for you to share, ask questions or vent. We are here for you.

I want you to know there is nothing you did to cause or could do to prevent an ectopic pregnancy. What you have just been through is both a physical and emotional trauma, and it affects us in ways we cannot possibly know until we have gone through it. Many women on these boards have shared stories of their continuing physical and emotional effects and their frustration at ā€œjust wanting to get back to normalā€. There is no set timeframe or standard course of recovery. Each woman does it in her own time and own way. While we wonā€™t forget our experiences, what I can say is that over time, day by day, things start to feel more normal.

What you are experiencing in regards to seeing other pregnant women and babies is completely natural as well. We can feel happy for their experiences but also grieve what we have lost at the same time. It does not make us bad people at all. Our ectopic pregnancies are difficult for our partners as well. Iā€™ve learned over time that men grieve differently to loss and that your partner will be hurting as well. It is important to keep the lines of communication open, and as you are able to share your feelings. You may find that writing in a journal helps to put your feelings down on paper, which might help you to share them with your partner. As well, If you think it may help, we can certainly arrange to speak to you about what you have been through and be a shoulder to lean on. My colleagues and I have also experienced ectopic pregnancy and understand how heartbreaking it is. You can ask any questions or simply tell us about the horrible time you have been through. You can also look at counseling services and emotional recovery support on our website under Patients/Emotional recovery.

Also, you can ask to see a GP at your practice and ask them to explore ways in which you can get help, and this can include referrals for ā€œtalking therapiesā€ or counselling. We have information on our website about finding counselling services. The charity Mind may also be of assistance. They have local centres and support groups and can offer services on a means-tested basis or sometimes free. You can find your local centre following this link if that may be useful too: http://www.mind.org.uk/information-support/local-minds/

No matter what, we are here for you whenever you need. Please know you are not alone and take all the time you need to look after yourself and recover.

With good wishes,

Michele

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811

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Hi A24, currently recovering from ectopic surgery and loss of my right tube. The heartache is unbearable. The EPU sent me away with some leaflets after my surgery, one of the leaflets was information on counselling specifically for ectopic and baby loss however I would need to be referred. I would say to contact your local EPU to see if they offer this service as they should do and if you could be referred. Take care of yourself :purple_heart: