Possible Cornual Ectopic Pregnancy, Info&Experience?

I was wondering if anybody else had been through something similar, because right now, i’m confused and depressed and feel so alone.

Six months ago I used Ella One and had some very painful side affects , and very late period. In March when things still weren’t easing and I had constant pelvic pain, fatigue and vomiting I went to the doctors and we started all the testing.

I have a mass, it’s in my uterus and apparently just where the fallopian tubes meets apparently. I’ve had a whole load of tests, the usual smear, swab for infections, urines, bloods, and it was the ultrasound that brought up the mass.

I waited another nine weeks for an urgent genecology appointment and they have told me they think it’s a strange presentation of an ectopic pregnancy - a cornual ectopic pregnancy or cancer.

It’s a bit beyond my understanding I admit - and it seems a bit beyond most of the nurses i’ve talked to understandings to as I have had seven pregnancy tests and bloodwork’s and none have shown a pregnancy - I would guess it is a pregnancy that has stopped growing? like a missed miscarriage perhaps, but an ectopic one. I just don’t’ really know. When I questioned the doctor he just said ‘well, it would be a strange presentation’. The worrying thing is that cornual ectopic pregnancies have a much higher mortality rate than the other types so I would have thought they’d take it seriously, but here i am back in the waiting lists - yesterday I developed shoulder tip pain so I went to the hospital again, and felt i got kind of brushed off because it’s not that type of ectopic pregnancy so I don’t have to worry about that and it’s just stress apparently - but I haven’t been given a list of what signs to worry about - i’m very lost right now.

Then there’s the option of cancer which was briefly discussed - which is simple, and okay I guess. It would be rare for my age (34) and would be a stress on my family as I have a young son but at least it would be an answer - still I feel like it should be taken more seriously, it’s been over two months since I had an ultrasound and I feel like i’ve been in hospital twice since then and shouldn’t they have check whether the mass was growing?

Has anybody experienced anything similar?

Dear sc1988,

I am so sorry to hear of the confusing time you are going through.

Unfortunately as we are a charity we cannot provide individualized medical advice. If the mass is a possible ectopic pregnancy, I would have thought your pregnancy hormone hCG would have been elevated at some point. If the pregnancy has been absorbed but a mass remains then it is completely normal to have negative hCG bloods. If your hCG is normal and it is a pregnancy then I would presume it is not continuing to device and increase in size which is where risks come from.

I am concerned that they have also mentioned cancer to you and you seem to be in a state of limbo. I would certainly chase your medical team up by calling the secretary of the doctor treating you to see when you have a next appointment. If you aren’t getting anywhere and you are in the UK, I would suggest contacting the Patient Advice Liaison Service (PALS) within your local hospital to see If they can chase things up on your behalf.

I am so sorry you are going through all of this and I’m sending gentle hugs,

Karen x

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