Pregnant after ruptured ectopic

Pregnant After Ectopic Pregnancy
1

Hi all,

I had emergency surgery for my ruptured ectopic at the beginning of September this year. After being scared of not being able to get pregnant again after losing one of my tubes, I have now found out I am pregnant again. I was surprised to get pregnant so quickly as it took us a year to get pregnant initially… I started tracking my ovulation this time and think that must have made a difference. I am petrified of things going wrong again, I will be calling the EPAU this week as was told I would need to have a scan at 6 weeks if I got pregnant again. It feels like the next couple of weeks are going to feel like a life time. I feel so sensitive of every little twinge since my op. I’m not letting myself get excited about being pregnant… I’m really trying not to think about it but it is constantly on my mind… I am so scared of going through the same thing again its such a mixture of emotions of feeling lucky to be pregnant to absoute fear of it being ectopic again. I would love to hear some positive stories to get me through the next couple of weeks if anybody has one?

Thank you,

2

Hi,

I honestly know where you are coming from. I had 2 eptopic pregnancys in 2019. 1 of them I had Methomexadate ( sorry for spelling) the other eptopic I had surgery to remove my rupture and tube. The surgery was life threatening and they did the most amazing job. But now I am pregnant, I’m not sure how far gone. I feel worried and anxious but at the same time I feel like this is a health baby in the right place. What step did you take after you found out you was pregnant?

3

Sorry to hear you’ve had such a difficult time. I really hope all goes well for you this time round.

I have a scan booked in this Friday but I am so anxious, I’m finding it difficult to sleep and feel so overwhelmed with emotions. I’m so scared of things going wrong again. I have no bleeding or pain this time round which is a positive although I am constantly worrying each time I go to the loo incase there is some. Have you got a scan booked in yet?

4

Dear 88Claire,

Whispered congratulations on your pregnancy,

These boards are filled with positive stories following ectopic pregnancy.

I too conceived successfully on my second pregnancy so I am sending lots of positive vibes for Friday.

Dear R4ch,I

Whispered congratulations on your pregnancy too,

We advise contacting your local EPU as soon as possible to book an early scan for around 6 weeks as there is more of a chance of seeing an embryo at this stage. If you are unable to self refer, please speak to a clinician in your doctors practice who will be able to refer you.

Although I do not wish to alarm you, I must advise to seek urgent medical advice with any abdominal pain or bleeding or you feel dizzy and unwell.

I will be channelling positive vibes your way too.

Sending much love ladies,

Karen x

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811

Ectopic pregnancy patient information suite: Highly Commended in the 2019 BMA Patient Information Awards

If we have been able to help you, are you able to help us with a small donation or by volunteering or fundraising?

Further information is available at ectopic.org.uk

Email us: ept@ectopic.org.uk

We provide a call-back helpline service: 020 7733 2653

Take a look at our newsletters and subscribe to our mailing list here: https://mailchi.mp/986bdd6091ee/ectopic-matters

Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team

5

Thank you, my scan confirmed this pregnancy is in the right place, too soon to see a heartbeat so I have another scan booked to check for a heartbeat. So relieved it is not ectopic although after all that has happened I won’t breath a sigh of relief until heartbeat confirmed. Feeling grateful though and praying this pregnancy goes well. Good luck to everyone. I was so worried I wouldn’t be able to get pregant again but to fall pregnant within a few months of my rupture makes me feel very lucky and hopefully will reassure others that it is possible even when tube has been removed.

6

Dear 88Claire,

Great news so far, we will be thinking of and for you next scan.

Sending more positive vibes,

Karen x

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811

Ectopic pregnancy patient information suite: Highly Commended in the 2019 BMA Patient Information Awards

If we have been able to help you, are you able to help us with a small donation or by volunteering or fundraising?

Further information is available at ectopic.org.uk

Email us: ept@ectopic.org.uk

We provide a call-back helpline service: 020 7733 2653

Take a look at our newsletters and subscribe to our mailing list here: https://mailchi.mp/986bdd6091ee/ectopic-matters

Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team

7

Hello, first time posting on here.

Had ruptured ectopic pregnancy July 2020 in middle of covid. Completely alone.

No support whatsoever.

Fast forward to now - age 38 in happy relationship and two children ages 12/14.

Only 6 weeks along and feel different normal symptoms, unlike my ectopic which was just pain.

Not sure how to feel right now?

Do I want it?

Don’t I want it?

I’m too old?

Feel selfish that feeling like I don’t sometimes.

My “Phoenix “ was ripped away from me at 9 weeks in 2020 and feel like I’ve been given another gift and then feel bad in myself if I don’t keep.

But I just don’t know……

Seeing doctor soon for scan

Sorry just don’t know who else to talk too

8

Dear Stephamacher,

Finding out we are pregnant following loss through a traumatic event such as ectopic pregnancy can throw up many questions, worries and anxieties.

If you can, I would speak to your partner about your concerns and see if you can come to a consensus together.

If you do decide to continue with your pregnancy, I would urge you to book in for an early pregnancy scan around now as you are 6 weeks along.

Sending much love,

Karen x

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811

Ectopic pregnancy patient information suite: Highly Commended in the 2019 BMA Patient Information Awards

If we have been able to help you, are you able to help us with a small donation or by volunteering or fundraising?

Further information is available at ectopic.org.uk

Email us: ept@ectopic.org.uk

We provide a call-back helpline service: 020 7733 2653

Take a look at our newsletters and subscribe to our mailing list here: https://mailchi.mp/986bdd6091ee/ectopic-matters

Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team

9

So glad to hear that your pregnancy is in the right place and I hope everything goes nice and smoothly for you. It fills me with hope! I’m in a similar position, I had an ectopic rupture at the end of August last year which completely took me by surprise as I’d had no bad pains or tell tale signs of an ectopic- I have had 2 previous healthy pregnancies aswell (2 boys ages 10 & 8) so to say it was a shock was an understatement! I have now just found out I’m pregnant again and what should be a happy revelation has left me feeling scared an anxious. I contacted my gp yesterday asking for a referral to the EPAU and the receptionist tried to give me a telephone appointment for the 19th Jan!! So a message was passed to a gp stating that I need an early scan but I didn’t hear back so now I’m super anxious with not being able to self refer. Going by dates I will be 4 weeks pregnant tomorrrow so I haven’t a lot of time to get things booked in, I’m going to have to keep chasing and pestering as I feel like I can’t breathe until I know everything is (fingers crossed) as it should be!

10

Hi, I know hospitals vary but the hospital where I had my surgery for my ruptured ectopic accept self referrals, have you rang directly to the EPAU to see if they will book you in? I was so anxious not knowing if baby was in the right place, it was some relief getting confirmation that baby was in the right place, I had to go back on Monday to check for a heartbeat and thankfully there is… I cried with relief at my scan but I still can’t let myself get excited yet. Only my partner and I know which is really hard… I’ve got terrible morning sickness and finding things quite tough. My ectopic was my first pregancy loss and it’s really taken its toll… The road ahead seems a very very long one… I’m so grateful to be pregnant and know I’m lucky to be. I really hope everything goes well for you and you can get a scan booked to put your mind at ease.

11

Hi, I checked online and it says they don’t accept self referrals. I had my local hospital call me for my booking in appointment yesterday and she confirmed that I have to be referred by my gp, so tomorrow I’m going to have to be a militant pain and keep on at them til I get to speak to a gp for the referral. I’m so please to hear there was a heartbeat, keeping everything crossed for you, what an awful first experience for you, but from what I’ve read online the majority of ectopics are one offs so hold onto that and remember the positives that you were able to fall pregnant again and baby is where they should be.

12

Dear DeeDee,

Whispered congratulations on your pregnancy,

if you aren’t getting anywhere, don’t be afraid to casually drop into the conversation with your GP or receptionist that NICE guidance states you require an early pregnancy scan at around 6 weeks with any pregnancy following an ectopic pregnancy. NICE National Institute for Clinical Excellence are guidance that health professionals should be following.

Some GP surgeries also have online access now too, so it will be worth filling out an online form if you can. Remind them of your previous ectopic pregnancy and the requirement for an early pregnancy scan and also the fact that your local EPU doesn’t accept self referrals.

I hope you manage to get through soon.

Dear 88Claire,

Fabulous news on the heartbeat, I have been thinking of you.

I know.you will still worry (I did too), but hurdle number 1 accomplished.

Sending much love and positive thoughts to you both,

Karen x

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811

Ectopic pregnancy patient information suite: Highly Commended in the 2019 BMA Patient Information Awards

If we have been able to help you, are you able to help us with a small donation or by volunteering or fundraising?

Further information is available at ectopic.org.uk

Email us: ept@ectopic.org.uk

We provide a call-back helpline service: 020 7733 2653

Take a look at our newsletters and subscribe to our mailing list here: https://mailchi.mp/986bdd6091ee/ectopic-matters

Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team

13

Thank you Karen, I went online today and made a bit of a fuss on their online form and someone called me by 11am this morning regarding a referral. I have now just received a call from the EPAU who want me to go in tomorrow, I’m not quite sure what they’re going to do though as I’ll only be 4w+2 so too early for a scan, of which they’re aware. I just want to fast forward the next couple of weeks, the anxiety is driving me mad!

14

Dear DeeDee,

I’m glad you got through. Yes, it is early yet so if they do scan you and they are unable to see anything. This would be normal at this stage. They may complete bloods, I’m not sure but I’d say just roll with it, at least you are in the system now and this may also help your anxiety a little bit.

Sending much love and positive thoughts,

Karen x

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811

Ectopic pregnancy patient information suite: Highly Commended in the 2019 BMA Patient Information Awards

If we have been able to help you, are you able to help us with a small donation or by volunteering or fundraising?

Further information is available at ectopic.org.uk

Email us: ept@ectopic.org.uk

We provide a call-back helpline service: 020 7733 2653

Take a look at our newsletters and subscribe to our mailing list here: https://mailchi.mp/986bdd6091ee/ectopic-matters

Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team

15

I went for an early scan today and they couldn’t see anything. They said the wall of my uterus is building nicely and I ovulated from the left ovary into my remaining left tube. I have had bloods done, so waiting on a phone call. They said it could just be too soon to see anything, she said she can’t see any issues with my tube so I’m holding onto that in the sense that maybe I’m actually only 2-3 weeks gone. They’ll tell me later today when I need to go back in for another scan. So another week or 2 of being on tenter hooks, I will try and relax - it’s all out of my control at this point x

16

Dear Dee Dee,

Yes, we guessed it might be too early didn’t we, but looking positive so far.

I really wish I could speed up time! Try to keep yourself busy, read, box sets, gentle walks, meet with friends, anything to keep you occupied. Not to disappoint you but stand alone hCG bloods aren’t always helpful as a single reading either. It normally needs serial bloods so they can check.If the hCG is doubling.

I hope you get some answers soon,

Sending much love and positive thoughts,

Karen x

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811

Ectopic pregnancy patient information suite: Highly Commended in the 2019 BMA Patient Information Awards

If we have been able to help you, are you able to help us with a small donation or by volunteering or fundraising?

Further information is available at ectopic.org.uk

Email us: ept@ectopic.org.uk

We provide a call-back helpline service: 020 7733 2653

Take a look at our newsletters and subscribe to our mailing list here: https://mailchi.mp/986bdd6091ee/ectopic-matters

Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team

17

Thanks Karen, they said my hcg was 284 on Tuesday and progesterone 81 (apparently that’s good) and they did my bloods again today and said it’s gone up to 606 and have asked me to go in tomorrow to be scanned again. Personally I feel it’s still too early and I’m just going to be disappointed and worried again, but she insisted and wouldn’t wait until after the weekend, so I’m just going to have to roll with it and see what happens x

18

Hi DeeDee how did your scan go? Hope all is well.

19

Hi DeeDee how did your scan go? Hope all is well.

20

Hi Claire, hope all is well with you :slight_smile: as I expected it was still too early. She thought she could possibly see a sac but there was a few other little black patches of fluid aswell, so she couldn’t confirm. I’m back tomorrow morning to hopefully we’ll be able to see something in the right place. Fingers crossed!