I am devastated.
I had my first ectopic pregnancy Oct 2015 and had my right tube removed. Then my husband & I started TTC again in Jan 2016, fell pregnant at the end of June 2016 to be told it was another ectopic. As I found out early on I was able to have methatrexate & I am currently being monitored for my hcg levels. I feel so low, my husband and I are 30 & 31 fit & healthy and really can’t believe we have had to go through this twice. Has anyone has similar and has had a positive outcome?
Hi Manders234
Sorry to hear that you’ve had to endure this twice. I haven’t had your specific experience but I have read stories on here about other women that have had multiple miscarriages and ectopics and have gone on to have healthy pregnancies later.
Wishing you strength and peace at this difficult time and hope you have a quick and peaceful resolution to current situation.
Abi x
Thanks very much Abi for taking the time to reply xx
Hi Manders234
I am so sorry for your losses. I am going through the same thing i had first ectopic in Feb this year (laparoscopy) didn’t have to take the tube taken as i was miscarrying out.) found out we were pregnant again on 27th May and i just knew i wasn’t right no pregnancy symptoms ect. Went straight to my EPU hcg not doubling and nothing in uterus. This time round they never actually saw the ectopic but as lining of womb was so thin and bloods they have said it was and still basically pregnancy of unknown location. Consultant thinks miscarried out of tube due to blood in my tummy at one point.I am devastated to say the least 
I am having active monitoring as hcg levels are low currently 64.
I just want you to know i am here if you need to talk it is such a good comfort. My EPU have said that they will do the dye test in 2-3 months to check the tubes i would suggest you ask your GP or EPU for this as can then see if anything is wrong. I have also asked about IVF as i dont think i can try naturally again im to scared.
speak soon xxx
Hi,
I 36 yrs old am currently going through the same experience. I got pregnant Sept 2015 after over 18 months of TTC and it turned out to be ectopic, I rushed from work to the hospital in pain having had no symptoms before that at all and had an emergency surgery that night and my left tube removed. After the surgery I was told my right tube looked fine. I then tried to recover before TTC again and I was going to have a dye test done privately in July as GP refused to refer me.
At the beginning of July I was late and had some unusual spotting, I took a PT and it was negative, about a week later it turned positive. I was referred to the EPU and had my HcG levels measured but was told it looked like a miscarriage. Then on the 20th July during the ultrasound they have confirmed it is an ectopic in my right tube. The consultant said to prepare for a surgery but another doctor gave me the option to be treated with a methotrexate. I didn’t know what to do as was told that if I try again - it will most likely be another ectopic. At the end I decided on the injection after which I felt fine and had no side effects, had my HcG levels checked at day 4 and 7 and it has fallen down by 15%. I hope that I will not need another injection, I am going to have my levels checked weekly from now on.
I was left under impression that it is best to have a surgery and the tube removed as then I would be entitled to an IVF but having just had a surgery 8 months ago I was not keen to go through with it.
When I asked about the dye test the consultant said the dye could have gone trough but I may have damaged cilia hence the ectopic. I have not had any STI’s or PID in the past.
So now I am left with one tube, which may be damaged and I don’t know what to do? Which tests do I need to do and is it safe to try again or is the IVF my only chance?
Hi
I am sorry for your losses it is devastating to have gone through this once but twice is just heartbreaking. I am in a similar situation.
1ST ectopic found in left tube and has surgery to remove but not tube as was miscarrying out. 2nd ectopic PUL never seen but knew from bloods scans etc.
I am in the same dilemma do we try again? as negative as it sounds and horrible for you to read the odds unfortunately are not in our favour i read this static:
After 2 or more ectopics
delivery rate 25%
recurrent ectopic rate about 25% so 50% of pregnancies are ectopic again
infertility rate - 50%
i know its like 50/50 just so tough.
sorry what is a damaged cilia? I am going to have the dye tests then make a decision. I have not had any STI’s or PID in the past either.
I would say have the dye test done as this shows if the tubes blocked/damaged etc in some cases apparently can help unblock small blockages not sure how true this is tho?
I regards to IVF i am so unsure if 2 ectopics allows you to be referred it all depends on area and NICE board of people who decide. If we could afford to do it privately i would in heartbeat. I dont think i can deal with the emotional side of trying again.
speak soon xx
Whats does your husband/partner think about trying again? I
Hello,
i’m so sorry to hear you’re going through this as well.
I too, am just going through my second ectopic pregnancy. Although this time, we’re not sure if it was an ectopic or miscarriage because the doc couldn’t see anything in the fallopian tube, the symptoms were similar to my first ectopic (ended up having left tube removed). It’s a very hard thing to go through, I’m 32 and very much in shape, live a pretty healthy lifestyle and can’t stop blaming myself. I know it doesn’t help much when people say this, but i’m telling myself that things happen for a reason, and to stay strong because I will get through it. My next step is to do a hysterosalpingogram, (think that’s how you spell it) where they will inject ink in, and see if my fallopian tubes are blocked and/or damaged. Although it’s a scary process, I just need to know if my only tube is ok. If not the, the next step will be IVF. Now because I got the methotrexate, i have to wait at least 3 months to even start taking my prenatals. I feel like this whole process is a terrifying waiting game, but again I keep telling myself that i’m strong and that life is too short to only see the dark side of this. Of course I have several moments of weakness, but I’m trying to stay positive.
Hi so sorry to hear u r going through this as well. I had my first ectopic in Jan this year and had surgery to remove right tube. Then in April found out I was pregnant and felt completely different to ectopic time so felt hopeful however turned out to be ectopic in the stump remaining from right tube. They initially treated me with methotrexate but then it ruptured so had surgery … I do not no what happened during that surgery. I have my follow up appt…at last…on Tues and have a massive list of questions for the surgeon. Hoping to get lots of answers and help me move on. It’s such a horrible thing to go through …especially more than once. Sending luv n hugs xxx
Hi
I had ectopic in left tube June 2014 that self resolved, then in Oct 2014 had another that resulted in loss of left tube. All so soul destroying. We waited until Jan to try again I then had a string of miscarriages, Apr, Jul and Nov 2015. Feb 2016 i discovered I was pregnant again, I was surprised we weren’t using contraception but not really trying either and both really tired from our sad experiences and working hard. I was anxious that we would have the same outcome, I am 28 weeks pregnant, still anxious but hopefully we will have a positive outcome this time.
After the second miscarriage I asked for a referral as I had had 4 losses by this point the gp gave me one, tests didn’t show anything, after the next miscarriage products of conception (horrible phrase) were taken for analysis the results were inconclusive. I had an appointment to a recurrent miscarriage clinic at Liverpool women hospital for further investigation, but fell pregnant before I could attend this. I did start taking aspirn as a consultant suggested as soon as I had a positive test. Maybe this did the trick we will never know.
My journey started when I was 32, totally innocent of the world I was about to enter, this baby is due just after my 35 birthday.
It is hard to keep faith that it will work out, and I was desperate to try again to replace the loss, at the start I thought it would all be OK next time and I’d feel better, now I know that I needed to grieve and I still am, i don’t think I will forget those other babies who didn’t make it. Some People assume that all is OK now I am advanced in pregnancy those other little souls will be in my heart and I still have moments of sadness when I think of them.
Look after yourself through this difficult journey, pester for investigations to be made. If your Dr isn’t helpful try another one, and talk to your family and friends, not all will understand or even show empathy or compassion , but some will be the rocks there to help and support you and your partner. xx
Hello all,
I have a similar story
I had my first ep March 2015, right tube was removed. Second ep beginning of August 2016, had an operation last week, my docs managed to save my left tube. They say that the tube was clear and there are no adhesions from previous operation and they really do not understand why it happened.
They offer now a test to put dye through the tube to see is it clear. I read from somewhere that cilia can be damaged inside the tube also and no tests can confirm that but it can cause egg to get stuck in the tube.
We have given 3 months to recover and then 6 months max to try naturally and during that time we need to get all ready for ivf. If not successful during that 6 months of trying, then we go straight for ivf.
I am absolutely terrified. I hate the idea of ivf. It seems to me so wrong, not natural. I do not like the idea of being injected of something that should make my body to work. I am scared it will result in some illnesses in the future or ovarian cancer or something else.
I want children but I am so confused about ivf. I am 38 and do not really have time to think a lot here.
I would have never in a million years thought that I have to experience ectopic twice. There is a big chance to have it third time, too. So difficult.
Hi Margaret78
Thank you for your reply. I am sorry for losses.
Can i please ask if you are going through IVF on the NHS? We have fertility app in October but i am so unsure if we will get it or not. We have been trying for 3 years with 2 ectopic but i am so confused with all the info on NHS website it states inferitle for 3 years but we have conceived just not int he right place link below:
http://www.nhs.uk/chq/Pages/889.aspx?CategoryID=54
Just really need some advice x
Hello E89,
We are going for private, as there are so many ifs and buts but I think I can’t get any help from NHS. I spoke to my doctors, and they said that I don’t qualify for NHS one. At least not with my current tubes, age etc.
I am in the right age gap but I do not tick all the boxes. I do not really have infertility problems (as I have got pregnant twice within 18 months) and therefore I don’t get help from them. Yes, I have had 2 ectopics and I have problems with my tubes, but one tube is still there and currently confirmed clear by the doctors. The doc did say that if he would have cut out the second tube, then yes, NHS helps, but as they saved the tube, I can’t get any help.
I will have the dye test done in October, if that confirms that the tube is blocked, then maybe I will get help from NHS. But I have heard that the waiting list under NHS can be very long. It depends really on the area where you live as well. I live close to London and considering how many people live here, I do not think I have time to wait for the NHS one, as I am already 38 and need to get a move on, if I ever want to have children.
I don’t know your age but if you are younger, I would definitely try again naturally. I am not sure you are “classed” as infertile, as you have got pregnant before, just because it was an ectopic or PUL, I do not think NHS will help, but I might be totally wrong. I am not an expert really either and it is worth to talk to your doctor and ask some advice. I know it is such a waiting game and so frustrating but (can’t understand clearly from your post) if you have both tubes still and if they are not blocked, then you still have chance! Do not give up hope! My situation is even more hopeless because of my age and the situation with tubes etc but I am not giving up and I am encouraging you to do the same. Please don’t give up!! I am happy to listen, if you want to moan or cry.
Take care
Hi Margaret78
Thank you so much for your reply.
It is so odd and stressful i just dont get it consultant @ EPU told me that i would be eligible as we have been trying for 3 years for 2 failed attempts.
I am 27 and still have both tubes but the chances of natural are so slim. I am going to have investigative surgery in the next 3 months including the dye test to see if they can see anything and fix if there is or is possible to do so.
How long have you been trying? as i believe that this is a major contributing factor. I think its awful how strict it all is and yes could be years to wait even if we were to be accepted.
I just feel so desperate if im honest im so low and tearful all the time nothing makes me feel better and to make it worse one of my close friends just had a little girl and 2 other friends announced pregnant with 2nd. I am so jealous and its tearing me apart my relationship is suffering i am a mess and just want this more than anything.
speak soon xx
Hi again E89,
Sorry for the late reply. Have had some tough times and did not get a chance to log in. My hcg levels started to rise and I had to have a methotrexate shot on Tuesday. My docs think that because they were so careful saving the tube, they did not want to “work” in that tube too much and some live cells were left behind, which are now growing. I just hope I do not need another shot or there might be that they have to take out my last tube completely, if MTX does nor work
I did not have problem getting pregnant. We did not try long. I got pregnant first time we tried and it was EP. Then wasnt ready to try again for a long time and when we decided to try again, I got pregnant after 2 months of trying and it was EP again. My doc says he knows I get pregnant easily but because of all this now and the MTX shot on top of it all, he thinks the chances for natural pregnancy are rather slim and he suggests to go straight for ivf now.
He does not even believe I am going to “pass” the dye test even I have 3 docs who are with me during this awful journey, all from the same hospital. 2 believe I have a good chance for natural pregnancy and 1 doc is trying to save me from all the pain, as he believes it will only result in another ectopic. He is ready to help us through ivf on nhs as he says my tubes are damaged. I am so, so confused. I do not know what to do.
He also said, that the people who cannot get pregnant, have to go through some waiting list (when nhs funds it) but if your tubes are damaged, you do not have to wait but you will be seen straight away. So its worth for you to check this. If consultant confirms your tubes are damaged, you might get help straight away.
My friend (another one) just announced yesterday she is pregnant. I feel the same as you, just want to cry when I hear it Its hard, you are not on your own, I feel your pain. Hugs!!!
Hello ladies,
Sorry to reply to this old thread but just wondering how you all are and if anyone has any success stories to share?
I am in the same boat and need to make a very difficult decision and need some advice.
This is my story in a nutshell, but you all know how awful it is:
-Nov 2015. 1st ever pregnancy. Left ectopic. Expectant managed
April 2016. Another left ectopic, resulted in losing my left tube
July 2016. PUL with a lot of pain and bleeding, but it resolved itself
now, March 2017: after taking 6 months off, we decided to try again only to be diagnosed with an ectopic in my remaining tube.
You all know how devastating this is.
We’re waiting to see how the HCG develops but the dr is saying methotrexate is the right thing to do to save my tube.
Our concern is we know from experience that if the tube is damaged it can result in yet another heartbreaking ectopic.
Does anyone have any success stories of it working after 3 ectopics and a damaged tube?!
Thanks all and thanks to this amazing organisation. It has got me through some very dark dark times x
Heya, I’m in the same boat. 1 miscarriage June 16 then pregnant in December 16 which turned out to be ectopic and I lost my right tube, then I fell pregnant the following month and again it was ectopic and in my right tube so I had the MTX to save my tube.
It’s. ow been 4 months and I’m waiting to see a consultant. I was told ivf may be my only option but the NHS says they won’t touch me for 2 years after the 1st ectopic because technically I’ve "fallen pregnant " seems a bit harsh considering I have no children and I don’t see what makes my situation any different from other women with infertility problems, we’re both childless with difficulties in beating children, it all seems a bit one sided. Trying not to be so angry but it’s hard to watch the work around u just appear with their 8 month bumps, makes me pretty envious n empty.
Would love to hear if any of u have had any successes x
Hey, I’m in the same boat. I just posted on another thread. I’m really sorry you are going through this too. It really sucks. I’m 34 years old and conceived my now 2 year old son with no issues. I fell pregnant last September and had my tube removed due to Ectopic #1 in November. I didn’t know I was pregnant that time around. #2 I fell pregnant in April and did know. It was very different and I was ecstatic to be pregnant. I had a sneaking suspicion something was wrong and insisted on an early scan and thorough follow up. I had methotrexate and a month later (I was 6 weeks) my hormone levels are back at zero. I’m finding the statistics after having 2 ectopics pretty overwhelming. I’m devastated by what has happened and feel pretty lonely. I feel like no one understands. I’m definitely grieving and the second ectopic was pretty dramatic, bring rushed to hospital in an ambulance. The impact on future fertility is what i’m struggling with the most. I don’t know how to private message but if you ever feel like chatting or venting I’m here. I get it. I really do. Sending you hugs xxx