Misdiagnosed ectopic over a year ago and I’m still upset?

Hi,

My names megan and I was misdiagnosed with and ectopic pregnancy in July 2017. Although it looks like it’s been a long time it still haunts me as it was such a traumatic experience for me.

My experience.

So… I became feeling poorly and was having bowel issues, dizziness, not able to eat anything so I went to visit the doctor who ran a few routine blood tests which where fine and i was sent home. My symptoms didn’t get any better I only gained more which where pains in my lower abdomen, I’d had two periods in one month and everything I ate came straight back out so I went to the doctor again they did some more blood tests asked me if I had done a pegnancy test (which a couple weeks before I did and it was negative) which she should of really done another one still but she didn’t? Told me it was probably IBS and gave me some tablets so off I went home again. Around week 4 and I woke up and had pains in my chest and shoulder which I left for the day because I thought maybe I’d slept funny but it only got worse so I went to A&E told them about all my problems they did blood tests (still no pregnancy test) which they told me it was fine I was a little bit anemic and it was probably an inflamed rib and gave me naproxen to take. So I’m trying to get on with life thinking these doctors are professionals they know what their on about right? No. A week later I was back at the doctors because I’d basically lived on rice crackers and water for 5 weeks my tummy was in agony but no. I was given more things to take for IBS! This time she felt my tummy (because I addressed my concerns about this being a gynaecological issue) “nope your tummy feels fine” off I pop again. A week later I get my period for that month or what I thought was my period, I could not move from the pain I was in and at this point I did something your always told not to do and that was… google my symptoms which of course the first thing was “Ectopic Pregnancy” I told my mum and boyfriend which they didn’t think was possible or the GP and doctors in A&E would of figured it out right?. By the end of that week I was not good at all still trying to get on with my life but my mum wanted me to go back to A&E. More tests done blah blah blah… a nurse shouted me and asked if I had done a water sample which I replied nope not one (which she did and it came back positivefor pregnancy) this nurse was a friend of my mums and she shouted me over again to tell me which I said iv got a feeling this could be an ectopic. I was brought back in the next day to have a scan and within 3 hours of having the scan I was checked by doctors (all the fiddly bits down below) and sent down for an emergency surgery. My right ovary and tube had been removed as the ectopic had ruptured and they were not able to save it due to the amount of time I had left it. I was just about to turn 20 years old 5 weeks after all of this happened. I was told that the blood had started to go septic and I had to have a blood transfusion the surgeon had said if I didn’t go in that weekend I wouldn’t of been alive the following week.

The purpose of this post is that it didn’t hit me at all whilst I spent the week in hospital I wouldn’t look at the giant scar across my tummy, it just didn’t seem real. A few months later I started to get my head around it but it still didn’t bother me as much as it probably should. Since then iv had to deal with endometriosis and scar tissue being removed and still to this day have issues with my stomach, but it’s all started to hit me at once these past couple months and I feel like no one understands because it’s been a year. I think it’s the fact that no one took notice in how much pain I was genuinely in crying every day, dragging myself out of the house to do things because I was told it was IBS I had to just deal with it and I lost so much weight because i couldn’t eat. Thankfully I had people by my side the whole time my mum, family and boyfriend but sometimes I just don’t think anyone understands who hasn’t been through it themselves. I’m sorry for the long post but I know someone out there probably needs this to know there not alone and it will also make people who think they may be having an ectopic aware of the symptoms. Also I’m willing to answer questions that anyone may have.

Thank you xx

Dear Megan,

I am so sorry to hear of your ectopic pregnancy and loss. You have been through a huge amount and it is very normal to feel overwhelmed. From your words, I can imagine how frightening the experience must have been and I am sorry you have had to go though this.

After a frightening ordeal like ectopic pregnancy, some women find that they suffer from Post Traumatic Stress and symptoms can include anxiety and not being able to focus on everyday things like work. There are a number of avenues that you could look into to get the help that you need.

We at the Trust believe that talking through what happened and your emotions as and when you can helps the healing process. We operate a helpline service and there’s no pressure whatsoever but if you would ever like the opportunity to speak over the phone to someone who has been through a similar experience, do feel free to call, details are below. We can take things at your pace entirely and you are free to ask any questions that are on your mind. You can talk about the ordeal you have been through and express your feelings to vent and let off some steam. We can exchange emails too, if you prefer that route. We’ll simply be here for you, however you wish and for as long as you wish.

In addition, you can ask to see a GP at your practice and ask them to explore ways in which you can get help and this can include referrals for “talking therapies” or counselling. We have information on our website about finding counselling services.

The charity Mind may also be of assistance. They have local centres and support groups and can offer services on a means-tested basis or sometimes free. You can find your local centre following this link if that may be useful too: http://www.mind.org.uk/information-support/local-minds/

Many women experience feelings of isolation after an ectopic pregnancy - I did, too. It is a frightening experience. Like you, I reached out to the Trust for support, for me it was 2years after my ectopic pregnancy. I found comfort in reading others posts. I didn’t feel so alone in how I was feeling. I was also advised to try counselling, which I did. Following this, I understood that although I would never forget my pregnancy or baby, I learnt to accept what had happened and crucially understand that it wasn’t my fault.

Please be kind to yourself, we will be here for you to lean on for as long as you need.

Sending much love,

Karen x

The Ectopic Pregnancy Trust

Registered Charity Number: 1071811


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Further information is available at ectopic.org.uk

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Thank you!

I’ll be sure to contact someone as I would like some help with coming to terms with it all.

Your reply gave me comfort in knowing it’s normal to still after a year be experiencing these things.

Megan x