Tb28 you must be absolutely sick of being poked and prodded by now!! I have never had so many needles in and out of my body as I have in the last two weeks, I hated it. The final insult was the anti-D I had to have (I’m rhesus negative) after surgery; the nurse said “oh poor you, they usually do this while you’re still under the anaesthetic”. I was SO fed up!
I’m holding out hope for you that your numbers may start dropping. I hope the scan has put your mind at ease slightly.
SAL34 have you had the results of today’s blood test?
Sorry if this is too personal but have either of you thought ahead to trying to conceive again? I think I need a good couple of months to come to terms with what’s happened but I would definitely like to try again. I’m considering having a hysterosalpingography to have my tubes checked but this would have to be arranged privately as it won’t be offered to me on the NHS.
Hi. I had the injection on the 10th May and was so ill within 2 days of having it, every side effect going I had, lost 3/4 days where I just wasn’t with it and was in and out of sleep, rushed bk to hospital coz And found out liver levels went from 21 to 829 in 2 days liver shouldn’t be working over 70 for it to be safe, hcg bloods were at 666 and today at 94 so it takes a 3/4 wks for levels to drop.
I’m still feeling very weak and tired, doing the food shop or a few things around the house leaves me feeling drained. Hospital have said it can take 1 month for me to be bk to normal.
You’re right - I’m so tired of being poked around!!
How could you had the have an anti-D injection? I only ask as I’m rhesus negative too.
Scan today finally showed something on my right tube and some bleeding in my abdomen. I’ve started bleeding more heavily so I’m praying my HCG levels will have gone down. If not, I’m booked in for methotrexate tomorrow. Should know later today.
At the start of the week I was wondering when I’d want to try again but am already thinking of it. I’m very nervous but the statistics show than a large percentage of women go on to have normal pregnancies after. If I had the jab I’d have to wait for at least 3 months which I’m finding frustrating as it took us 8 months to get pregnant this time.
KarenLisa I’m so sorry to hear you’ve had such a rough time. Did they do a liver blood test before you had the injection? Did they warn you it would be that bad? Still very nervous as would prefer to stay at work this week but it sounds like there’s not going to be a lot of chance of that
I read the NICE guidelines and they said you only need the anti-D in the event of surgery for ectopic. Medical management or expectant management don’t require it. I’m not sure why that is but I was glad the hospital were on the ball with it.
Any update on your hcg levels? Has the bleeding brought any pain? You sound like you’re being really pragmatic about the whole thing. Really pleased for you that the waiting is nearly over.
We tried for 11 months for our first so I appreciate what it’s like having the months go slowly by. Are you trying for your first?
KarenLisa you’ve had a really tough time I was under the impression that your liver function should be tested before you have the metho?? Sounds as though you’ve had a really severe reaction, I’m sorry to hear that and hope you’re nearly at the end of this horrible journey.
The good news is that my HCG levels dropped from 566 to 422 on Sunday. But I got a lot of shoulder pain, abdominal pain and feeling dizzy yesterday.
They scanned and found more free fluid so have kept me in for the night on a drip for observation, prepped for surgery just in case (sounds similar to you VE123?)
Bloods last night were ok and HCG being tested this morning, along with full blood count. If HCG has fallen again I’ll be allowed to go on with expectant management.
Quite interesting to read this post through - 3 very similar cases or slow rising HCG and a diagnosis of a PUL and 3 different outcomes.
Take care ladies and always get shoulder or abdominal bloating or slight pain checked out
Yep, it’s surprising how we’ve all had different outcomes! That’s a really big drop in hcg over the weekend. Sounds as though your body may be doing what it needs to. The symptoms must be a bit concerning (and painful) for you though. Hope you’re at home now resting.
I’m feeling much better today after being put on antibiotics for a UTI yesterday. I had my first night of pain free undisturbed sleep in what seems like forever Hope it continues this way.
Oh bless you!! Do they think that’s related to the EP or surgery at all? What a crap time to have it! Have your levels now gone down completely? How did you feel after the surgery?
My levels dropped to 103 today so I was allowed to go home and rest. With such a drop in 48 hours I’m expecting to be at 0 on Thursday. The bleeding in my abdomen still seems odd so that’s what they’re keeping a close eye on now.
Oh that’s great news!! Your numbers are dropping so quickly and hopefully this will all be over for you soon. Are you having some time off work at the moment? I’m not sure when my levels will go to 0. I think I’ll leave it another week and then take a test. I’m terrified of seeing a positive :?
I’m confused about why I had internal bleeding too… the pregnancy had already come out of my tube on its own and was sat in a ‘cavity’. There’s so much I feel like I forgot to ask the consultant and I’m not sure they have all the answers anyway.
I think the UTI may be from the catheter during surgery as I’ve read that’s a really common cause. Seems to be clearing thank goodness!
So just a quick update. My levels yesterday were down to 39. They don’t want to see me for another 7 days now so I guess I’m out of danger.
Emotionally I’m hitting rock bottom now that I’ve sort of been discharged medically. Over the last 3 weeks I’ve had contact with the EPAU on a daily basis and suddenly I’m feeling very very alone. There are still a lot of questions in my mind about why it happened and what exactly did happen - what was with the internal bleeding and is everything ok for the future? When can we try again and do I even want to try again??
Trying to give my head time to catch up with everything that had happened to me. This website is very right when it says you deal with loosing a baby and your own mortality, as well as the normal physical aspects when going through an ectopic. When people ask how I’m doing, I just focus on the physical aspect and say I’m fine now. It’s hard to explain all of this to someone who hasn’t gone through it.
Hoping everyone else is ok and recovering. To any one who is reading this - keep talking. This forum has kept me going over the last few weeks. Talking about it has helped so much
Please feel free to rant away! Really pleased for you that physically you’re nearly back to where you need to be. How are you feeling after a couple of days away from the EPU? I was so relieved when they were done with me if I’m honest. In my head I stopped being a patient and it was the beginning of my ‘recovery’.
Maybe it would help to write a list of questions to take along to the EPU when you next go for bloods? I just get the impression that they often don’t have the answers that we’re looking for. They couldn’t give me any suggestions of why it happened to me. I don’t fit any of the at risk groups… aside from age maybe as I’m 34 now.
I think as you had no medical management you’re ok to try whenever you’re ready. I am terrified that it’ll happen again but I’m sure my desire to have another child will outweigh my worries of another ep. How is your partner feeling about it all?
I did a pregnancy test 10 days after surgery and it was still faintly positive so hormones seem to be taking a while to leave my system despite the pregnancy being surgically removed I’ll test again in a week.
Sorry to jump on this board a bit late, but my story is quite similar (although very drawn out), and I would love to hear how you’re doing now.
Short version (still quite long…) of what happened: Started out in early June with PUL, assuming miscarriage (had one previously). Waiting and monitoring, slow rising HCG for 2 weeks. Biopsy and MVA to sort out cyst in uterus and tell body it’s not pregnant, no success. MTX, some pain and bleeding, decreasing HCG. Then, 4 weeks after MTX when we were just thinking it’s almost over, more pain, bleeding, and surgery to remove fluid, over 6 cm mass and damaged tube last week. Where that mass came from when nothing was ever on any scan, who knows.
Feeling quite under the weather now and trying to decide how to go on. How are you all feeling now, that a few weeks have passed? Have you been told when you can take pre-natals again? We’ll need to wait until the end of September at least before ttc because of MTX, but it would be nice to have as much time as possible on folic acid again beforehand.
Hi papercrane. So sorry to hear of your recent ordeal, you have certainly been through a lot. Isn’t it unbelievable that a 6cm mass could be missed on a scan?? Although actually my mass was 5cm and they didn’t spot that either!
I never had MTX so I began taking prenatals again a few days post surgery. I don’t know this for sure but my understanding was that you mustn’t take them straight after MTX as it can interfere with how the drug works. As your mass was later surgically removed I’d assume you’re safe to start building up your folate levels again? Maybe best to consult a gynae about it first. Are you having any follow up at all or have you been discharged?
Although I was planning to wait a couple of months to try again I found my desire to be pregnant again completely overwhelming. We weren’t actively trying but to our great surprise I got a positive pregnancy test exactly one month after surgery! I am now in my 7th week and a scan has confirmed all is well so far.
I really hope you’re feeling better soon. Sending best wishes for the future xx
I was diagnosed with an ectopic pregnancy in May. I presented at A&E after I have started to bleed -very lightly then started to get worse. The bleeding eased off after a couple of days and I was referred to EPU for monitoring. I got my HCG took which started off at 1100 then dropped to 550 then down to 200 so I was told I was having a miscarriage. I got my HCG took again and I was absolutely amazed that it had went back up, not much but still went back up. This time it was at around 400. I was told I was having an ectopic pregnancy I was booked in for a scan but nothing showed, the scan was inconclusive. They decided to still monitor me with regular HCG tests and book me in for another scan in a weeks time. Levels still continued to rise, not doubling but going up by 100 each time. It’s scan day and I’m praying my little bundle is found… scan inconclusive again. They were adimant it was ectopic so they wanted me to take the methotrexate on the same day - I refused. I needed time to think. I decided to go for the methotrexate injection after a long hard think. I was adamant I wanted a scan before proceding with the methatrextae and the hospital agreed and said it was routine anyway. I got my scan on the 18th May and I’ve never prayed to find a little bambino so much in my life - we found it! The last chance we really had and we found it. I know it might sound a little mad but that was my closure, I needed to know I was making the right decision. Tucked up in the right tube very close to my Overy there was my little bambino. It’s such a terrible experience and my heart goes out to anyone who experiences it. I got the methotrexate jag just after that scan. I continued to have my HCG levels checked until they reached 0. It took 4 weeks and I got my period the same day.
I was told to wait 3 months before falling pregnant again but I fell pregnant after 2 months of receiving the jag. I am still in the early stages and I am booked in for an early scan but so far HCG levels doubling as they should
Congrats to both of you though!! How exciting! I’ll keep my fingers crossed that everything goes well It’ll probably take us a bit longer to conceive now with only one tube left, but I still have hope, maybe we’ll get there by the end of this year or next year at some point.
I was under the impression that your liver function should be tested before you have the metho?? Sounds as though you’ve had a really severe reaction, I’m sorry to hear that and hope you’re nearly at the end of this horrible journey.
Hope it continues this way.
I’ll test again in a week.