IVF -will they remove my tubes?

hi everyone,

i hope people can help me with my question!

unfortunately i have suffered 3 ectopic pregnancies in the space of 15 months :frowning:

1st - left side - surgery tube not taken

2nd - unknown side -expectant management

3rd - unknown side -Methotrexate

We have finally had our funding approved for NHS IVF and are hoping to have our first consultation May/June

i was just wondering if they are likely to want to remove both my tubes??? to avoid the possibility of another devastating ectopic.

Thank you

Emily

Dear Emily,

I am so sorry to hear of your ectopic pregnancies and losses, to experience one loss is difficult, to deal with multiple losses is heartbreaking and my heart truly goes out to you.

Unfortunately I am not medically trained so cannot give you specific advice on your queries but as far as I know, Drs don’t generally remove fallopian tubes as a matter of routine with IVF.

It is natural to be worried after everything you have been through. Sadly even with IVF there is the risk of ectopic pregnancy and removal of fallopian tubes wouldn’t sadly guarantee than an ectopic pregnancy will never happen. Doctors may not also want to remove Fallopian tubes as they may want to avoid extra surgical procedures which may not be needed and chance of infection introduced with it.

Importantly more information will be available as you’ll have an initial consultation with a fertility specialist who will discuss the process in detail as they have access to your medical records. It is often handy to write down your questions for your doctor so you have your important questions answered.

I have added more information​ about the IVF process here:

http://www.hfea.gov.uk/IVF.html

Sending much love,

Karen x


If we have been able to help you, are you able to help us with a small donation or by volunteering?

Further information is available at http://www.ectopic.org.uk

Email us at ept@ectopic.org.uk.

Our helpline is 020 7733 2653 (available Monday to Friday 10am - 4pm).

Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team.


Hi Kerry

Many thanks for your reply x

Yes i am so worried about another ectopic, they have said im more likely to experience one conceiving naturally over IVF which i suppose is a slight comfort but its the fear that im really struggling with. I suppose all i can do is wait and see and pray for the best.

thank you very much for the link

All the best

xxx

Hi there,

My history is very much like your own. I was diagnosed with bilateral hydrosalphinx and this led to fluid being present in my tubes as well as damage which was causing my multiple extopics. My clinic showed me research which concluded that having damaged tubes removed prior to IVF increases the chance of success. So I went ahead and had my 1 remaining tube (I lost my left after a 2nd ectopic) removed.

Since then I have undergone 2 rounds of IVF, of which both were successful and I now have 2 healthy children. Lots of luck and hope. Xxx

Hi

Many thanks for your reply Jodeflo.

I am sorry for your losses, i am soooooooo happy that IVF worked for you :slight_smile:

They have said that tubes do not fluid in but i have never had the dye test and i imagine they will do this prior to ivf treatment starting?

If it does help me chances i just want them out! i wish my consultant would have done further tests on tubes before referral because i am have know more at this point. They believe they are scared/adhesions from ectopics however 2 were never seen (PUL) but new from lining & HCG levels that it was an ectopic.

If you dont mind me asking how did you find treatment? were you self funded? did it work time for you?

I look forward to your reply x

Hi E89,

So sorry to hear about your three ectopic pregnancies. How devestating and what an awful time you must have had. I’ve suffered through one ectopic pregnancy and two miscarriages on my quest to have a family. Its an unbelievably sad to go lose any pregnancy but I can imagine three ectopics would be especially horrific.

I’ve got a three year old son conceived easily and naturally however struggled to have another after him. After my three losses I had testing done and part of that was the hycosy (dye test through tubes). Mine showed up clear despite the ectopic however I decided to move on to IVF due to recurrent pregnancy loss and the fact that I was nearing age 35.

I’m in Australia and we don’t have a public health system that is quite as generous as in the UK. We pay out of pocket for IVF however can claim a portion of the costs back. Not sure how it works in the UK but I chose to do IVF with PGD (preimplantation genetic diagnosis). I chose the PGD due to recurrent pregnancy loss and wanting to maximise my chances of success sooner and avoiding future pregnancy losses (couldn’t take any more emotionally). The PGD is very expensive and all out of pocket costs. I ended up doing two rounds of IVF with PGD. First round was unsuccessful. On my second round I had a transfer of a PGD normal embryo and am now heavily pregnant and due to have a healthy baby in a few weeks. So for me, IVF has been absolutely worth it and has given me my miracle baby.

Re the IVF treatment itself, I found it not so bad physically but difficult emotionally. I was with a wonderful clinic with a lot of support staff and counsellors. Having an unsuccessful round is very difficult to take but you kind of just have to pick yourself up and move forward. It is absolutely all worth it in the end.

If you have any specific questions about the treatment I had I am more than happy to discuss with you. Not sure how different it is in the UK but for me it was worth paying thr extra to have PGD done on our embryos to reduce the potential of future miscarriages or unsuccessful transfers. My heart just couldn’t have taken any more miscarriages at that time.

Best of luck to you and hoping you have success early on in your IVF journey…