Hi all,
It has been over 7 months since my methotrexate injections, and I’m still in pain My due date is approaching and I find it really difficult to move on whilst still in pain. Here is a summary of my story (I apologise even the summary is long)…
03/09/2016 - Positive pregnancy test, calculated that we were 5 weeks pregnant.
04/09/2016 - I did another pregnancy test just to be sure… still positive! Later that day was when I started presenting pain on the right side in my lower back/pelvis
08/09/2016 - I started spotting. My partner took me to a&e and we were referred to EPAU for the 13th
10/09/2016 - the pain in my back started to get worse, and my right buttock and leg began the go numb, I was also still spotting.
12/09/2016 - I started bleeding heavily and found it really difficult to walk or sit and started getting shooting pains down my leg as well as the numbness.
13/09/2016 - we went to the EPAU. Internal Scan showed no sac, and my hcg was low for that of someone who was 6w3d. We were told I was most likely having a miscarriage and to come back in 48 hours for more blood tests. Symptoms remained the same.
15/09/2016 - my hcg had dropped slightly, miscarriage was confirmed. Asked us to come back in a week. Symptoms remained the same.
22/09/2016 - bleeding had stopped a few days earlier. Pain was worse, especially in right leg. My hcg had risen which was when Ectopic pregnancy was suspected.
24/09/2016 - hcg had risen but wasn’t doubling.
25/09/2016 - hcg was still rising, internal scan and abdominal scan showed nothing. I was told I had a pregnancy of unknown location.
26/09/2016 - hcg still rising, still nothing on internal scan. They decided that Methotrexate was the best option, so I received my injection that afternoon.
27-29/09/2016 - on top of everything else I was now extremely exhausted, lightheaded, nauseous, aching and had chest pains! I was also experiencing mild abdominal pain (combination of MTX and pain relief).
30/09/2016-01/10/2016 - I also started having discomfort while going to the toilet. Abdomen pain started getting worse.
02/10/2016 - I was in excruciating pain in my lower right abdomen. Rung hospital, they said it’s probably the Methotrexate working.
03/10/2016 - I was in hospital all day as I was in such a bad way when I got there for my blood tests. My hcg hadn’t dropped. I had another abdominal scan which now showed I had a 33.5mmX35mm cyst on my right ovary which they thought might be causing the pain. They decided to leave it another week to see if the MTX would work.
04-07/10/2016 - MTX effects started to wear off.
08/10/2016 - began bleeding. Still experiencing pain (on the right side) in my lower back, ache/numbness in leg, lower abdomen but it was starting to subside.
10/10/2016 - hcg had dropped significantly.
17/10/2016 - hcg still dropping. Told them that I was still in pain in my back, leg and abdomen and I was advised to go to physio.
19/10/2016 - Physio couldn’t find cause for my pain, and suggested I go to the GP to get referred for an MRI.
24/10/2016 - hcg was finally low enough to be discharged. I asked for advice on my ongoing pain/cyst and I was told no follow up appointment would be needed and that the pain should go away once I’ve recovered fully and cyst will go away on its own.
29/11/2016 - I went to the GP as I was still presenting on going pain in my lower back on the right side, and had a constant ache in my right leg. I also noticed that the pain got worse during my first period and had sharp pains in my lower right abdomen. I was prescribed more pain relief and told that the cyst wasn’t a concern.
06/12/2016 - I went for a private consultation , and was referred for an ultrasound scan.
22/12/2016 - I had an abdominal ultrasound.
29/12/2016 - the results of the scan were satisfactory. The cyst had gone and everything else looked normal (to my disappointment as I wanted answers). I was told the body can take a while to recover, and to leave it another month.
07/02/2016 - I contacted the consultant to say that I was still presenting ongoing pain. I was advised I needed an NHS consultation to be referred for Laparoscopy.
08/02/2016 - went to the GP and was referred to gynaecology.
29/03/2016 - had my consultation and was referred for a Laparoscopy.
I’m still waiting for a Laparoscopy… I’m told I could be looking at mid October before I get seen
I have had a constant pain in my lower back/pelvis (right side) and ache/numb like sensation in my right leg, which gets worse during my period and ovulation. During ovulation I have sometimes experienced excruciating pain in my lower right abdomen, which has left me bed bound. I also some days get sharp pains in my lower right abdomen and there is also discomfort when my bladder or bowel is full. I didn’t experience any of this before I got pregnant, has anyone gone through anything similar and can offer some advice?