I’m a mess over the weekend I was diagnosed with a mass in my right uterus they said it was an ectopic pregnancy. At first they couldn’t find anything on the scans and I’d been testing positive since June 6th. Anyways. My hcg levels where at 5600!! They then dropped to 4800 and they knew I was super anxious about surgery so offered me the injection. I’m on day 3 now. But the hours before my injection I started to bleed quite nasty clots and they’re wee super painful. My boobs stopped hurting and I just felt different… am I wishful thinking that this could be my baby passing? I’m terrified of a rupture and it’s honestly no doubt all our worst fears but I look for every single twinge or pain I’m sending myself crazy! Any success stories that the injection worker for them would be appreciated right now
Hi Annieanxious
Sorry you are going through this!
I just wanted to let you know that I was in exactly the same position as you are back in March. In the days leading up to my methotrexate injection I was having heavy bleeding and passed 2 or 3 golf ball sized clots which gave me really bad cramping and pain. I went on to have one dose of methotrexate which dropped my levels down to 2 after 5 days. Even though I had the big clots I still was so fearful that it was going to rupture with every twinge, it was like I didn’t want to move incase i caused it to rupture.
As I said it dropped to 2 and I was discharged from the EPU. It didn’t stop the worrying feeling of “what if there’s still a mass there and what if it would still rupture” but within time those feelings of worry did start to shrink.
I’m currently on my first month ttc after the ectopic and have been feeling twinges on that side but hoping it’s not happening to me again!
Good luck with everything, let me know if I can answer any questions you might have!
I guess the main thing is just to TRY as hard as it is, not to overthink each twinge and just take it easy and look after yourself, but the methotrexate worked for me and I hope it does for you too.
xx
Hey! So sorry to hear you’re having such a hard time!
My first week after the methotrexate injection felt awful too. I’d started bleeding and had shoulder tip pain so went back to the hospital and ended up being kept in for observation. Luckily it turned out to just be bad side effects but I understand what you mean, I was freaking out constantly thinking it could mean a rupture. You’ll know yourself if something doesn’t feel right, if it doesn’t just go back to the hospital. They’d rather you were cautious!
I ended up needing a second dose of methotrexate but you do definitely start feeling much less horrendous after the first few days. The tiredness and sort of achey feeling takes a while but it definitely lessens after the first few days too. Just listen to your body, if you’re tired just sleep - regardless of the time of day - I kept thinking I needed to be a bit more productive and get on with things and you definitely don’t. You’re also not being melodramatic. I kept apologising to nurses and doctors as I thought I was wasting people’s time. It’s a really serious thing you’re going through and you know your body so if something feels off, go get checked. Definitely better to be safe than sorry!!
I hope that helps? Happy to chat if you need to chat! xx
Thank you both!
I think I’m more concerned that my levels were so high!! I nearly fell off my chair and with that theyll so long to go down and it’s just such a long time to be sat worrying and waiting
If it makes you feel better my levels were at 4600 on the day I got my second injection of methotrexate and by day 4 they had came down to 2700. By day 7 they were down to 1640; day 14 they were 496 and this week down to 278!
I’m so pleased it’s going down for you! How do you feel? Can I ask did you bleed and get pains? I’ve got slightly niggling pains on the side of my ep that my doc said was normal
Physically I feel like I’m not just sort getting back to myself but still absolutely shattered all the time. One of the side effects is a sore mouth and gums and that’s only just started within the last week or so and is definitely not fun! - but definitely getting better.
I was bleeding and felt like I had bad cramps but only on the side I had the ectopic. I had shoulder tip pain too but when I went in to get double checked they said it was all normal. I think it’s difficult because it seems like no two people have the same experience with ectopic!
That is so true. I think it’s very touch and go isn’t it. I’ve got no paint but I have been keeping up with my pain killers I just want the injection to work so bad
Sorry you are going through this… but yes I had hcg at 4600 when I had the methotrexate injection, in 7 days it was down to 3000, then I had weekly hcg blood tests. It did take around 10 weeks to get to a hcg of 0 and two weeks later I started my period. It was still painful at times the contractions and I bled through out but I got there and you will too. My ectopic didn’t rupture.
Annieanxious:
I’m a messover the weekend I was diagnosed with a mass in my right uterus they said it was an ectopic pregnancy. At first they couldn’t find anything on the scans and I’d been testing positive since June 6th. Anyways. My hcg levels where at 5600!! They then dropped to 4800 and they knew I was super anxious about surgery so offered me the injection. I’m on day 3 now. But the hours before my injection I started to bleed quite nasty clots and they’re wee super painful. My boobs stopped hurting and I just felt different… am I wishful thinking that this could be my baby passing? I’m terrified of a rupture and it’s honestly no doubt all our worst fears but I look for every single twinge or pain I’m sending myself crazy! Any success stories that the injection worker for them would be appreciated right now
Thank you! I’ve been trying to figure out if I’ve passed clots and my boobs don’t hurt anymore is the embryo still growing in my tube or has the heart stopped beating now? It’s a very confusing time but places like this certainly help
Detailed medical questions its best you ask the doctor or nurse when you go again for your hcg check up as no one here could tell you how your specific embryo has developed. My understanding is lowering hcg will be the embryo development is less so omitting less hcg. I had a small amount if clots come out at 4600, none straight after the methotrexate and loads the last couple weeks before my hcg was 0.
It’s definitely a confusing time. Everytime I had a hcg blood I’d ask question and got wish washy answers. I learnt more online than anywhere else. I really had no understanding of when it would end or have another period from the nurses. Had to keep looking online.
Annieanxious:
Thank you! I’ve been trying to figure out if I’ve passed clots and my boobs don’t hurt anymore is the embryo still growing in my tube or has the heart stopped beating now? It’s a very confusing time but places like this certainly help
I’m back tomorrow for my day 4 and although I know they can rise slightly I’m praying they have fallen. The mass they found was 3cm and to me that just sounds huge!! So the thought of it still growing makes me fill with worry
I was advised day 4 it can increase your HCG, mine actually dropped, then it had to be a 15% drop day 7, if not then there’s a second injection.
My HCG went to 7900, down to 1700, then I was told it was ectopic at 4600 they never found a pregnancy anywhere, but because my HCG had gone up again, no sign in my womb and I had pain in my left hip they said it was ectopic.
Try not to think about it growing. I think the limit to who they give a methotrexate injection is a woman with 5000 HCG and under, if over they will do the surgery so they clearly believe the HCG will do it alone. After my injection I didn’t bleed more cramp more but it still dropped by 1500 a week so try not to worry about how much bleeding there is.
Hope you get a good drop.
Annieanxious:
I’m back tomorrow for my day 4 and although I know they can rise slightly I’m praying they have fallen. The mass they found was 3cm and to me that just sounds huge!! So the thought of it still growing makes me fill with worry
ChaoticBlues
Thank you that’s very reassuring !! I will let you know