How aware were we?????

Hi just wanted to see if anyone had any idea what was involved in an ep before there own? I didn’t I had heard it mentioned but really had no idea how common it was and what was involved.

Had you any knowledge of EP’s before your own?
  • Yes?
  • No?
0 voters

Of course I had knowledge because of my background but I honestly didn’t have any idea about how ectopic was going to affect me and completely change my life in every respect.

There is room for you to raise awareness and you might like to consider all the ways you could do that we are ALWAYS looking for pairs of hands to help out

http://www.ectopic.org/trust/volunteers.htm

I’ve said no, the answer is more of a “Not really”. When pregnant with DS I was vaguely aware of this ‘thing called ectopic’ but didn’t know what it was… and even when I was in and out of hospital before having EP surgery, I truly didn’t know, understand, appreciate how serious it is and how devastating it is… and the after effects it can bring.

Now I know. And now I know a lot more about myself and also about the people around me.

Jill x

Izzie I have downloaded the application form printed it off and plan on completing it over my weekend. I really want to help raise awareness in whatever way I can thanks for the info

Annmarie xxx

I knew about them but to be honest I never gave it much thought. Its only when it came knocking on my own door that I realised how devastating they are and how massive an affect they have :frowning:

Hi LittleP,

I knew of ectopics because my godmother had an abdominal ectopic when I was growing up. When I had right sided discomfort where my leg joins my pelvis during early pregnancy I looked up EP in a book I have - but unfortunately it described severe one sided abdominal pain, which wasn’t what I had, so I decided it couldn’t be that.

I really feel following my ectopic which was almost symptom free until I nearly died, that NHS resources would be better spent offering every woman a 6 week scan to rule out ectopic, rather than the “dating” scans which are now routinely done. A date for a baby’s birth is not a life-or-death thing, but for a substantial number of women, an earlier diagnosis of ectopic would mean saving the huge amount of money that a ruptured ectopic costs the NHS, not to mention the emotional and physical pain for the woman. I know it will never happen.

I answered yes.

I remember when I was about 21 a woman at work having one and thinking how awful. When I was pg with my DS skipped past the pages in the pregnancy book again thinking what a terrible thing . Little did I know it would come to me a couple of years later.

When I saw 2 drs one said,as I was symptom free, that it wouldn’t be ectopic, the other said ‘ectopic? now that wouldn’t be very clever would it?’ like it was my fault. I was amazed how little GPs know about ectopic. My GP said he’d never seen in his whole career notes which said ‘pregnancy of unknown location’ and the practice had a meeting about my case!!

I answered no. I knew of ep but did not know that much about it. I know when I had my son I feared he was in my tube because I was having so much pain but found out it was a cyst THANK GOD!!! I wrote him a letter saying that I dont know what I would do if he were not in the right spot. Then 1 year after he was born I had my ep :cry: . Strange really how I felt I might have one with him but it turned out fine and then I had one not too long afterwards.

Jayden

I answered yes. Two of my friends have had EP’s, although I only became much more aware of what was involved when my second friend had her EP about 5 years ago (some stuff from what she told me and the rest from reading info on the internet). Both friends now have children.

Even though I was aware of what an EP was and what was involved, it was still a huge shock when I found out I had an EP, as I thought it was another miscarriage.

Sarah xx

I knew what an ectopic pregnancy was, but I knew nothing about the symptoms or the danger signs.

It’s all well and good telling women what an ectopic pregnancy is and that certain tings such as the coil or infections can increase the risk, but what’s the point if you don’t warn women of the danger signs?

I guess I was pretty much like everyone else, I knew what an ep was, but I didn’t no much else besides it’s a pregnancy that’s in the wrong place. We learned about it in health class I think, when we were leanring of risks of I THINK IUD and sterilization reversals.

I knew what it was. I knew the symptoms. But even when i had one sided pain and knew i was six weeks pregnant i didn’t believe it could be ectopic pregnancy because I was under the illusion that you always bled with this (and i didn’t bleed at all), and also that it was extremely rare. So i guess I knew about it, but i was misinformed by what i’d read in my pregnancy books about it.

I answered no - but like Jill, wish there was a ‘not really’ button as I vaguely knew about EPs but not the ins and outs of it and certainly not the aftermath you’re left with.

x

A colleague of mine had had one and had been completely devastated by it about 8 years before mine so I knew about it and the heartbreak and physical pain it brings.

Didn’t know enough tho cos when I collapsed with mine at 11 weeks complete with abdo and shoulder pain (which I’d heard was a sign) I begged my husband not to call the ambulance “because it was just wind” and I “didn’t want to cause a fuss” and I really didn’t know that it could happen as ‘late’ as 11 weeks.

How glad am I that he didn’t listen to me! :shock:

I remember it being on the news ages ago about Sophie Wessex (Prince Edward’s wife) being helicoptered to hospital when she had an EP so I vaguely knew what it was and that it was very serious but didn’t know the full details until the consultant was drawing me a picture just before I was taken in for surgery for first EP. I’d had a miscarriage before and my only concern was that I was miscarrying again but I couldn’t understand why the pain was so much more excruciating.

I had heard of ectopic pregnancy before and like Aileen said remember that the Countess of Wessex had one and it was ‘serious’. I had no idea that women still die as a result of internal bleeding from EP and like many of the other ladies have written I had no idea of the trauma and life changing experience it would be

Sarah x

I’d heard of ep before as my cousin had one about 2years before me her’s ruptured and it was twins.

Samantha xxx

I had heard the term “ectopic pregnancy” and I knew it meant not in the right place, but no I didn’t know anything more than that at all

i had heard the story of a friends mother who suffered from one, which i was told at age 16, so i voted yes.

however, i never knew how much it could affect one s life and how it was treated,

so when the diagnosis was put

i felt the floor shaking beneath my feet

and didn t know what to think.

a part of me wished i still was as little aware as i was at age 16 tho.

Mary

My sister-in-law had one and if it hadn’t been for her I would have no idea.