Any hope after 2 ectopics???? Help please

MISS_SIBS · 28 October 2021 11:34

Hi all

MI’ve posted on here a couple of times before, I had an ectopic pregnancy diagnosed in May with surgery to remove my right tube in June.

Was due to undergo tests at the beginning of October however much to my surprise even though me and my partner were not trying and I did try to avoid ovulation I must’ve ovulated late and ended up with a positive pregnancy test which a week later ended unfortunately.

During that time I was experiencing pain and some bleeding so I went to the EPU and they scanned me couldn’t see anything in the uterine cavity but they did say they spotted something very small near my left tube the second time I went to get scanned this was no longer seen, my lining had got thinner and then my blood hcg levels went on to reduce as well to non pregnant levels. Fast forward to yesterday and I had a hycosy scan To check my remaining left tube and lining which was ridiculously painful for me and the doctor wasn’t very happy with how the dye was flowing out of the tube. I Was obviously very worried so I managed to get a telephone consultation with my fertility consultant yesterday afternoon and she said my tube could be blockage and it’s a possibility that my recent miscarriage was a small ectopic and something could still be there disturbing the tube, They are going to be repeating the scan but a HSG this time under a x-ray then review the situation again.

I’m just so scared now I’ve only got one tube left I’ve potentially had to ectopic‘s possibly one in my remaining tube that I’ve got left which now could’ve caused inflammation there. I know I kind of need to wait until more tests have been done to know but I just wondered if anybody is been through something similar.

I have a beautiful little girl who is three years old so IVF would never be offered to me under the NHS and I couldn’t afford it privately i’m just so scared that this is the end of the road for me with wanting another baby.

On top of all of this I have issues with my lining being thin so it’s just literally been one thing after another this year and it’s really starting to affect my mental health.

Any positive stories around this would be greatly appreciated I feel like I just need a little bit of hope now or any advice of someone that’s been in a similar situation would be lovely.

This is a rather long post so if you have read this I really do appreciate it but just wanted to give my background story

Thanks xxx

EPT_Host_22 · 29 October 2021 08:01

Hi MISS_SIBS,

I am so sorry to hear that you are going through this worrying time. There can be so much unknown with ectopic pregnancies, and it’s frustrating when diagnostic tests do not work in the way they are meant to do. It’s good that you have continued to connect with your doctors and that you are having follow up visits.

I’m not medically qualified to comment on your specific situation. I did have two ectopic pregnancies, losing a tube and uterine rupture. I did manage to conceive naturally after those events, on a different timeline than I thought. I share this knowing we may not be in the same situation, but offering a little bit of hope. There is so much that is unknown with fertility and conception.

I know it’s easier to say than to do, but please be kind to yourself right now. You are going through a lot and have been through a lot (everything heightened by Covid). Please know we will continue to be here for you as you need and for as long as you need.

With good wishes,

Michele

The Ectopic Pregnancy Trust

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During the coronavirus outbreak, The EPT team is still working hard to provide crucial information and support to women and families experiencing ectopic pregnancy as quickly and efficiently as we can.

If we have been able to help you, are you able to help us with a small donation or by volunteering or fundraising?

Further information is available at ectopic.org.uk

Email us: ept@ectopic.org.uk

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MISS_SIBS · 31 October 2021 16:08

Hi Michele

Thank you for you reply thats amazing that you still managed to conceive naturally do you mind me asking were your ectopics in the same tube?

Im really struggling emotionally at the moment and am feeling myself slipping into depression. Im lucky i have a beautiful little girl but i just want to give her a brother or sister and i feel like i am not complete until i have that. Does that sound really bad.

I was told today that my tube may actually be fully blocked so not really sure whats going to happen if it is.

Im starting to think maybe IVF might be my only option which il need to explore more.

Feeling just so sad and deflated this year has been a huge emotional rollercoaster for me.

Xx

EPT_Host_22 · 5 November 2021 08:12

Hi Miss Sibs,

My heart goes out to you. I know how difficult the uncertainty can be, especially when coupled with these past couple of years. In my case, my second ectopic was actually inside my uterus, attached to spot where tube was removed.

We at the Trust believe that talking through what happened and your emotions as and when you can helps the healing process. We are more than happy to talk with you on the email or telephone you and answer any questions you may have or simply listen about your experience. In addition, you can ask to see a GP at your practice and ask them to explore ways in which you can get help and this can include referrals for “talking therapies” or counseling. The charity, Mind, may also be of assistance. They have local centres and support groups and can offer services on a means-tested basis or sometimes free. You can find your local centre following this link if that may be useful too: http://www.mind.org.uk/information-support/local-minds/.

Please know that we are here for you anytime - to ask questions, to share or just to vent.