9 Months Post-Op and Still Struggling

Hi all,

Newbie here!

I’m 9 months post-op following an ectopic pregnancy, which resulted in my left Fallopian tube being removed (this was my first pregnancy).

The entire process was long and painful, with doctors and nurses adamant from Day 1 that I had miscarried and there were no longer any remnants of the pregnancy inside my body.

Much to their surprise and 2 weeks later - I was still bleeding and in absolute agony, by which point I was begging for them to perform surgery to find out what was going on down there (being in hospital alone with no support was taking it out of me).

Following my surgery it was confirmed that my pregnancy was in fact ectopic (which I’d been sure about from the start), I was missing 1 Fallopian tube and didn’t have so much as an apology from the hospital staff (bar 1 nurse who was absolutely perfect throughout).

9 months on I’m still unsure of everything that’s gone on and I have many questions left unanswered.

Given the experience I had at the hospital, I feel that I don’t want to step foot there again and ask questions I really don’t want to hear the answer to (even though I should). In addition, this experience has put me off even setting food into my GP’s for normal check ups i.e. Smears etc.

I’m hoping some of you ladies can answer these for me:

  1. Why am I still in pain? (9 months later)

  2. What percentage do I have of having children again? (1 tube down, 24 y/o and in very good health otherwise).

  3. Do any of you still use medication for any pain or discomfort?

  4. What happens when I want to try for another baby? (I’ve told my new partner and he’s been absolutely supportive. He wants to do right by me and ensure I’m comfortable first).

  5. What are the chances of a 2nd ectopic pregnancy?

Thanks so much,

Aimée

Hi Aimee.

Firstly I’m really sorry for your loss and send you much love. It’s a difficult thing to go through. I had a similar situation, but with my second pregnancy. I’m not sure why you’re still experiencing pain but have read that maybe it can be from scar tissue. Is there another surgery local to you that you could transfer to so that you start afresh with a new doctor? It’s hard to trust when your trust has already been broken in such a painful way so maybe a fresh start would be good? I also am not sure about figures entirely but I believe there’s a very high chance of concieving again naturally given your age (one of my friends also had an ectopic in her first pregnancy and has since gone on to have two healthy pregnancies which gave her two beautiful children, so there is much hope for you!). I also think that although there is an increased risk of a second ectopic, I believe it’s quite a low percentage at around 10% of it happening again. I hope this helps and I’m sure other people will know more than me. My thoughts are with you in the meantime and hope you get some help and some answers xxx

Dear Aimee,

I am so sorry to hear of your ectopic pregnancy and loss.

When we experience ectopic pregnancy we are suddenly faced with a life threatening emergency and it’s treatment, reduction in fertility, concerns about the future and the loss of our babies. Experiencing any one of these is an ordeal, putting them together is immense and your feelings are completely normal.

It is normal to experience some pain after ectopic pregnancy as your body has been through a great ordeal. The pain could be due to adhesions or scar tissue which formed as part of your healing. It could also be due to heightened awareness because of your sad loss. You may also be feeling ovulation pain (many women including myself never felt ovulation pain before the ectopic pregnancy and experience these sensations after). I think it may be worth keeping a pain diary to record when you feel the pain (including when in your cycle), its intensity on a scale of 1-10 and if anything helps such as rest, a hot water bottle, paracetamol etc. I would suggest keeping these notes for about 4/6 weeks and then seeing your doctors with this information as it would help them determine how best to manage your symptoms.

I understand that you do not want to be around medical professionals right now, but it is important to seek medical advice if necessary and especially important to be up to date with investigations such as smears. Do you have a GP you trust in your surgery that you would feel comfortable visiting?

If you want information about what happened to you to answer your questions, you could ask the Patient Advice Liaison Service (PALS) within your local hospital to help. If you do not feel you could attend the hospital, you could call and ask the telephone operator to put you through to PALS, have your general questions or concerns ready to discuss with them so they know how best to help you.

It is completely normal to feel anxious about the future. When trying to conceive we experience a mix of emotions from wanting to try again to being petrified of what may lie ahead. We will never forget our pregnancy or babies but we do learn to accept what happened and begin to understand that it wasn’t our fault. It is a slow process - might be weeks or months ahead.

In time, we can get to a place where we feel comfortable trying again. When this is, is individual for each person. There is no timeframe for recovery, take each day as it comes.

It maybe comforting to know that the chances of a further ectopic after a first in UK is 10%. So that’s 90% chance of the embryo being in right place next time.

It is generally possible to conceive after an ectopic pregnancy. The time it takes to conceive successfully after an ectopic pregnancy varies considerably from couple to couple. This can be affected by factors including age, general health, reproductive health and how often you have intercourse (sex). Unfortunately, we don’t have access to your and your partner’s medical records to comment on these, but it is usually possible to conceive and, overall, 65% of women are healthily pregnant within 18 months of an ectopic pregnancy. Some studies suggest this figure rises to around 85% over two years.

Generally, when a person has only one fallopian tube and both ovaries, they are still able to get pregnant from an egg at the opposite ovary as an egg from one ovary can travel down the tube on the other side. The fallopian tubes are not attached to the ovaries and, at the point of ovulation, some very delicate structures called the fimbriae begin to move gently creating a slight vacuum to suck the egg toward the end of the tube it is nearest to (like lots of little fingers waving and drawing the egg towards it). So, if you have only one tube then there is only one set of receptors working and one set of fimbriae creating a vacuum and so the egg is much more likely to find its way to that tube, whichever ovary it is produced from. Conservative estimates suggest that an egg produced on the tubeless side manages to descend the remaining tube around 15 to 20% of the time.

Sadly, it is not possible to stop an ectopic pregnancy from happening. Importantly, help is available with future pregnancies with an early scan at around six weeks gestation to check that the embryo is in the right place. We are here too for emotional support, as and when you need us.

Making the decision to begin trying to conceive is an emotional rollercoaster compounded by our sad loss. Again, you are not alone. We here emotional support whenever you need us. There is a specific TTC board you can look at too whenever feel ready.

Sending much love,

Karen x


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