Advice needed - having an ectopic but baby has not come away

Can anyone help ? I am desperate need of advice . We got a positive pregnancy test jan 8th. Day of lmp 9th Dec . We were over the moon all appeared to go well then the weekend of 14 th jan I had intense lower back pain for three days then it stopped . Then on the Monday intense pain ,no blood, but went to a&e , examines as too early for scan , cervix shut and no tenderness in ovaries , told to come back if any more pain but I should be ok . Spoke to midwife she said I should be 6 weeks by the day so sent me for early scan .i didn’t sleep night before , I knew there was a problem. Went for scan , nothing in womb! They saw so fluid but would t commit to it being a sac. I then thought maybe they r too early as period 32 days so that’s why but thetool bloods and they were 2547 hcg level so they should’ve seen something ! Pregnancy test still positive and so I remained hopeful and they were wrong ! I went back two days later bloods again and this time they had risen but only by 800, they scanned me again as I was in a state and they saw a mass maybe a fibroid around left ovary none communal and what could be a sac or maybe not … so gave me a leaflet pregnancy in unknown location ! Back again two days later and bloods went up again but only by 500 , spoke to doctors they think it’s a sailing pregnancy . Options are a scope, the injection or tear it conservatively as I’m in no pain or no blood the latter we opt for ! I am in bits ! So more bloods two days later and they have dropped by 100! Still high but not dropping low enough . I have had on off tiny spotting nothing major but this is 3 weeks on and no loss of baby it’s in there somewhere and no one can help me … feel consumed about this ! Now this is not my first pregnancy and I don’t know why it’s effectingme this way ! I have two healthy children but we wanted this one and it’s heart breaking ! I also know I’m loosing this but why won’t my body let it go ! This is killing me ! When will this be over ! Not back at hospital for another three days for more bloods ! I feel like I live there and everyone around me is pregnant ! I feel u grateful as I have children but I also feel lost alone and worried that I missing work and missing out on this baby ! Anyone help? Thanks x

Failing * not sailing !

Dear Hopefloats18,

I am so sorry to hear of your loss.

Not knowing what is happening to our bodies can be extremely overwhelming and you have a friend here who understands. Whilst I was not diagnosed with a pregnancy of unknown location, I was admitted to hospital with a ? ectopic pregnancy on a Friday evening of a bank holiday weekend so I had to wait until the Tuesday to be informed that I was indeed having an ectopic pregnancy and it really was the most anxious wait.

It is important to understand that Pregnancy of unknown location - (PUL) is not a diagnosis; it is a label given until the final location of the pregnancy can be identified with certainty. In the event of a PUL, blood will be taken to measure serum progesterone and hCG and the hCG test repeated 48 hours later. The doctors would also want to repeat the scan.

Until the location of the pregnancy is known definitively or the serum hormone levels have decreased to below pregnancy levels, there is a risk of complications associated with an as yet undiagnosed ectopic pregnancy. Whilst I do not wish to alarm you, for every 100 pregnancies labelled as a PUL about 10 will subsequently be found to be ectopic; but not all of these will need treatment. If treatment is required, (methotraxate injection or surgery) this will depend on the results of blood tests and scans and I would discuss this further with you Dr.

We would gently remind you to not undertake any strenuous exercise or lifting or housework while your hCG levels are dropping. While I do not want to alarm you, there remains the risk of rupture even with low or declining hCG levels. You should not resume exercise until your hCG levels are falling consistently and are in the low 100s.

Whilst I do not wish to alarm you, if you experience any worsening bleeding or abdominal pain, shoulder tip pain bladder or bowel problems or feel dizzy and unwell please seek urgent medical advice.

I am sorry that I cannot provide you with more precise details but I hope all becomes much clearer over the forthcoming blood tests and scans.

We are here for you for as long as you need,

Sending much love,

Karen x


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